Thank you for your reply
Anonymous
January 9, 2007 at 2:57 pm
D and K and Kedaso:
Thank you for your follow up. I am “forced” into taking things from day to day and I seem to have more weakness than anything else. I am trying to stick with a “specialist” of neuromuscular diseases in Orange County but I certainly will keep your group in mind from Tri-City. I am very familiar with that area as I have relatives there.
I am new at navigating this site but saw your older posts.
Are you still on IVIG or the plasmapharesis? I am leary of what the steroids can do to a person.
I’ll keep in touch and let you know what’s going on.
Take care,
Taryn