thank you all for the input!
it’s really appreciated–
i will see the neuro thursday at 1230! i may have to pay out of pocket and get reimbursed latter–so what–
i agree oldbat (v), to do what’s right today, etc.
i’ll discuss options thursday.
lindah, welcome to you. i know much less than many on this site as i haven’t been here very long either– but i wanted to say just this: route cause may at best remain a “theory” if you have cidp– perhaps you are undergoing the usual round of rule out tests– don’t know. my sense is that a quick and correct diagnosis is most important, followed by a treatment plan.
i’ve only had this dreadfulness since dec 07 so i am newish too– feel free to contact me if ever you want to talk…
again– i am so happy to be here with you all and feel a sense of family–bonded together by a resistant cord…
alice