Tell me what it is so i can fix it!
June 1, 2008 at 3:14 pm
[FONT=”Comic Sans MS”][SIZE=”2″]Charles,
How utterly frustrated you must be, no matter how scary [I]sounding [/I] the name of a disease or syndrome, putting a name to it gives comfort somehow, if that makes sense to you.
I’ve learned through our friends here on this forum that the only consistent about GBS/CIDP is it’s inconsistency! No two of us seem to have the same symptoms, but many similarities.
I am fortunate that when i was finally diagnosed it was at a large teaching hospital in reasonable distance from home, and that i’ve been with the same group of wonderful Neurologists ever since.
What medications are you taking, and how much mobility do you have?
Wishing you the best,
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