Teen with GBS

March 19, 2009 at 4:02 pm

hello Josh’s Grandma,

i am a 17 year old who was diagnosed with GBS 10 days after my 17th birthday, so i know what Josh is going through, when i was first diagnosed i was given treatment through IVIG, but when that was unhelpful i was given plasmaphoresis. i had 14 days worth of plasmaphoresis, and then 4 weeks after i had a relapse and was given 2 days worth of IVIG. its been two months since with no relapse but there is no denying the fear is constant, if there is anything i can help with please let me know because i know how helpful it was for me knowing i wasnt the only one.