Taste buds

March 27, 2009 at 6:30 pm

I too am a newbie-i am recovering well since gbs onset in dec of 08-the first 6-8 weeks my taste sense was way out of kilter but has gradually returned to norm.I wonder if anyone has cold flashes-mine start in my nose and front teeth and center on shins ,fingers and thighs-strange but i perfer these to hot flashes.Be brave and tenacious.PAX

taste buds

November 6, 2006 at 4:34 am

I had Miller Fisher variant of GBS. My face was paralysed – i couldnt open my eyes at first and when i could i couldnt move them. I couldnt raise my eyebrows or make a smile. The doctors were forever getting students to work out which facial nerves were affected lol. Anyway, one day out of interest they decided to see if i could smell or taste. I was able to smell my deoderant and they gave me sugar and salt to see if I could taste the difference and i could (at this stage i was being fed through my nose so hadnt had anything to taste except toothpaste lol) You would think if anyone with GBS was going to have their taste buds affected it would be someone with MF variant. The funny thing was i had a huge ulcer on my tongue from the tube when i was intubated. I could feel it onmy tongue but didnt feel any pain – thank god as everyone remarked on how painful it looked.