My son went in at three years old and could no longer walk, talk, and had lost control of his bladder, etc. He underwent IVIG for a week, but never was referred for OT or PT. I never knew that was something he needed at the time because I had never heard of the disease. They said he was fine even though it took him a while to do some of this.
Now, he appears to have diminished fine motor skills at age 7 and is lagging behind in completing basic tasks like writing and tying his shoes. Can it really wait two to three years before the after effects appear? I am very concerned.