You will be in our thoughts and prayer’s that you will have the strength to be there for your dear friend. And you will be in our thoughts and prayers that you yourself will be able to get through this and not understand, but to endure. THIS IOU is for you:
ONE HUG EACH DAY, TO PICK IT UP JUST CLOSE YOUR EYES AND FEEL.
This is a thread that should be brought up to the top from time to time. Many times I’ve felt like I was the only one who didn’t have support from their family and friends at home. My first year with CIDP, I had my mother and father who showed that they were there for me. My mom and dad would take me to the hospital clinic for my infusions and they were with me when I had all those necessary tests done. My father even crawled on the floor to get to me during one of my falls. Then during the second year of CIDP, my dad died. My mother is still living and she would do anything possibly for me (her children were her whole life), but she is no longer well, confined to bed and declining as the years go by. My sister died eleven years ago, but I know in my heart, that had she lived, she would have been my help and support. That leaves my brother in the immediate family and it is so very hard to understand what is wrong there, because he’s never helped me. I cannot talk to him about this syndrome I have, though he has been told what I have. I don’t think he has tried to learn about it, I don’t think any of his four adult children know anything other then a name. If they were asked what is wrong with your aunt, I don’t think they’d even remember or have a knowledge of CIDP. No-one in my family knows who my family doctor is or who my new neurologist is. It seems like they just don’t care enough to talk to me about it. I THINK THEY ALL REALLY DO BELIEVE I JUST SIT IN A WHEELCHAIR AND FEEL NOTHING AND HAVE A FUN FILLED LIFE.
Ever since my rock, my father died, I take care of myself. I provide my transportation by using a homecare agency because if I depended on family and that includes near-by cousins and nieces and nephews, I’d NEVER get out of the house.