August 31, 2008 at 3:28 am

Hi Ally

There have been a few people recently who have posted that they feel that they are “healed”, or “cured”. Certainly their symptoms have diminished to a degree where they don’t need meds, and their physical issues are resolved.

Definitely have a search on the threads for their stories!

Good luck, welcome to the family. You have done well to be diagnosed so quickly, and you are having IVIg, which is the gold star treatment. As Mark says, give it some time.

I have had CIDP for some years – and been having IVIg for about 5. I am stable.

Take care of yourself and I hope that things get more positive.



February 9, 2008 at 12:10 pm

It’s really is great to hear about success stories….I’m waiting and not too patiently to be one too 😉 My family doc tells me every time I see him that I am an inspiration, to see how far I’ve come. He says, so you are not where you want to be, too bad, you’ve come a long way from “death’s door”, keep plodding along, you’ll get there. It’s hard to stay “up” all the time when you go to bed hurting and wake up hurting. Kudos to Stacy Baker! I’d love to hear more success stories, especially ones that tell you how they got there. Maybe they did something that we hadn’t thought about or given the option to try. Best wishes too all!