I am Tousley’s mom. I just wanted everyone to know that Tousley, age 19, received 4 Rituxan treatments in August of 2008. He has been improoving since. He went to his Dr. last week for another follow up and for the first time ALL of his reflexes were back and strong. It surprised the Dr. Tousley says this is the strongest he has ever felt. He has had the disease since he was 16.
Now we are trying to get the insurance to approve it. I need any help I can get. Names , addresses of people that have had good results with Rituxin, studies that have been successful, info on any group effort that is working for the approval, and any other ideas any one has. 🙂