Study Update – More Participants Required

January 6, 2012 at 9:41 am

[CENTER][FONT=Calibri][SIZE=4]2nd Study Announcement[/SIZE][/FONT]

[FONT=Calibri][SIZE=4]Ongoing Request for Participants[/SIZE][/FONT]
[CENTER][FONT=Calibri][SIZE=4]“Genome Wide Association Study of Guillain-Barré Syndrome”[/SIZE][/FONT][/CENTER]


[FONT=Calibri][SIZE=4]Investigators at the Perelman School of Medicine at the University of Pennsylvania in Philadelphia, Pennsylvania are continuing their study to examine genetic factors for susceptibility to developing Guillain- Barré Syndrome.[/SIZE][/FONT]
[FONT=Calibri][SIZE=4]Eligibility for participating include the following:[/SIZE][/FONT]
[FONT=Calibri][SIZE=4]-Age 18 years or older[/SIZE][/FONT]
[FONT=Calibri][SIZE=4]-Have had GBS at anytime in the past, including as a child[/SIZE][/FONT]
[FONT=Calibri][SIZE=4]-Be willing to provide limited medical records documenting a diagnosis of AIDP[/SIZE][/FONT]
[FONT=Calibri][SIZE=4]-Be willing to donate a saliva sample for analysis[/SIZE][/FONT]
[FONT=Calibri][SIZE=4]If you are interesting in hearing more about this study and potentially participate, please contact:[/SIZE][/FONT]

[CENTER][FONT=Calibri][SIZE=4]Ms. Valerie Nguyen[/SIZE][/FONT]

[FONT=Calibri][SIZE=4]UPenn-GBS Study Coordinator[/SIZE][/FONT]
[CENTER][FONT=Calibri][SIZE=4]Perelman School of Medicine at the University of Pennsylvania[/SIZE][/FONT]
[FONT=Calibri][SIZE=4]Email: [/SIZE][/FONT][EMAIL=””][FONT=Calibri][SIZE=4][COLOR=#0000ff][/COLOR][/SIZE][/FONT][/EMAIL][/CENTER]


[FONT=Calibri][SIZE=3]Investigators at Penn: Dr. Irving Nachamkin and Dr. Dimitri Monos, Department of Pathology and Laboratory Medicine; Dr. Arthur Asbury, Dr. Raymond Price, Department of Neurology[/SIZE][/FONT]
[FONT=Calibri][SIZE=3]Funding Source: GBS/CIDP Foundation International[/SIZE][/FONT]
[FONT=Calibri][SIZE=3][I][B]Study Progress Report (as of Jan 2012)[/B][/I][/SIZE][/FONT]
[SIZE=3][FONT=Calibri][I][B]We have had a tremendous response from the GBS community in response to our initial study announcement, with hundreds of inquiries and over 110 individuals consenting to participate. However, only in about 20% have we been able to confirm the diagnosis of AIDP based on review of available medical records. Thus, we need to enroll many more individuals with AIDP into the study to achieve our goals for the study. [/B][/I][/FONT][/SIZE]