study group in CIDP

February 5, 2009 at 5:21 pm

There was a study of about 300 people with CIDP done through the GBS/CIDP Foundation. I think the “population” was all people that had written for information about CIDP and said they had it. The problem with using only people that participate in a Forum is that it may not be representative of the whole population since one is more likely to be active if you have medical issues. If someone is doing well (or the caregiver of someone doing well), it is natural to be out doing other things. this does not mean that this would not be a great group about which to gather information–it is just that the questions that are asked have to be such that that was considered.
WithHope for a cure of these diseases