Hello,
I should have followed up and let our new members know that the FIRST CHAPTER of CODYSTANLEY’S CIDP STORY is here on the forum, it would either be the MAIN FORUM or CIP/CIDP. Since my hands cannot do the posting I asked for help, jfitzen did CODYSTANLEY’S CIDP STORY and Sue (thank you Sue) did the FINAL CHAPTER of my story.

Meadow, my FINAL CHAPTER would make sense to you if you searched and read my FIRST CHAPTER. Another way to find it would be to search through posts our member jfitzen did.

Hello Family,
I just thought I would add an update. I am doing very well as far as CIDP goes. I have not shown signs of a relapse or that the syndrome is progressing. I HAVE REMAINED STABLE. November 3rd (I’ll celebrate at the symposium) will mark three years that I have been off ALL and ANY medication for CIDP. That’s right ALL.

For the past year, I have not been doing too well with rehab. and walking again depends on that. STRESS and FRUSTRATION got ahold of me. I am slowly getting what worries me under control again. I think the symposium will do me alot of good and I’m hoping that I will be able to post my BIG little IMPROVEMENTS again.

Hello family,
I wanted my story posted because it may give us HOPE. I had no more then our common treatments and it worked for me. I am no longer progressing. November will mark three years that I have been off “ALL” syndrome medications. I have shown no signs of a relapse and though they appear on a year to year basis, improvements and re-gaining muscle strength are still coming. I COMPLETELY BELIEVE THAT WE DO HAVE HOPE.

I’ll email or PM jfitzen and see if he knows why you can’t open it. The way to do it is beyond my computer knowledge. I was able to open it.
Liz