Just wanted to let you all know that nothing has changed! If anything, I think I am sweating MORE! I would have never even thought it was possible. I have recently had to hire someone to help me around the house. She lives with us and helps us with the kids and the house because I just went through a 6 week slumber where I was only awake for about 7 hours a day. My husband could no longer handle my load of the housework, mostly with the kids. I was in the hospital during one of those weeks for IVIG and I told him that he should look into hiring help for the time I was going to be gone. He said “I can handle it”. I let him know that when Mom is out of the picture, Dad doesn’t realize that his workload isn’t doubled, it is quadrupeled(not sure how to spell that one)!!!!! He said no need. Well, 2 weeks into my home recovery, he came into our bedroom and gave me an FYI “I am looking for a live in Nanny, I can’t do this anymore”.
We were so lucky to find someone that has been with us for 3 weeks, but has had ties to his family in one way or another for 40 years! I let her know of my illness and she did some research, but we are both stumped on the sweating part of it. She is here to do most of the heavy work. When I get involved and do any little thing, I am soaking wet, like I just showered with my clothes on and she is bone dry.
I know it is this Damn disease doing this to us. Any doctor who says otherwise or thinks otherwise shoukd keep their mouth shut. There aren’t enough “specialist” who know every symptom that this disease brings us to dismiss any symptoms we bring up. All I know is that when I was healthy and worked out at the gym, I didn’t sweat as much as I do now when I try to squeeze a lemon! 😮