Still considering surgery
Thanks so much for all of your input. We are still weighing everything before actually going through with the surgery. The problem is that Brett’s left foot (the one we are wanting to have surgery on) is so severely deformed from weakness and rolling out already that he is in pain everyday that he walks. He is incurring sores and callouses and more and more deformity. The ortho says that what he hopes to fix is the rolling out. By fusing some of the bones on the top of the foot then his foot can no longer roll out therefore there would no longer be pressure on the sides of his braces causing the sores and the callouses would not be so bad either because they are on the outer edge of his foot, also caused by the rolling motion. We just don’t see any other way to stop the pain he is in. I do fear that the surgery itself will cause other complications with his nerves not regenerating in certain areas and with overall weakness. This doctor has done many of these surgeries on kids with Cerebral Palsy and other neuromuscular diseases with good outcomes but CIDP is different in so many ways. Hopefully when we see the doctor a few days before the surgery we will get some more questions answered. If not then we may just have to put it off for awhile. Please keep us in your prayers.
Thanks so much,