started out slow

August 9, 2009 at 6:10 pm

It started out slow, which is why it took so long for the final dx…wasted time..of about a year before they started the IVIG treatments. I kept getting told they had to cross off what I DIDN’T have on the long list of Neurological Diseases/Syndromes/Problems, and be told, “okay, thanks for the new symptoms, and see you in two months so you can tell me your new added symptoms…”. I was very aggravating in the beginning, not knowing what this was going on in my body. They at first thought I had MS…but that got crossed off the list.

As far as the skin biopsy, any doctor can perform it. It is very simple. A quick jab in the numbed, affected thigh, and it is done, and sent off to a lab.
I didn’t have the skin biopsy done until about the 2nd or 3rd year into the CIDP, when other things started going wrong.

I kinda think that anyone who has had CIDP for a while. should get the skin biopsy done. It would be good to know what might be in store for each person, and kinda give a push to the neuro, to try and put the CIDP into remission, before it does too much damage to the autonomic system.