Kelly and Emily, I will always have you both in my thoughts and prayers. Emily
has such a wonderful spirit, my grand-daughter is 12 and an ice skater. I tried to
roller skate once with her but I looked like a giraffe with 8 legs!! Take care, both
of you.

Ms. Judy

Sorry, I didn’t intend for it to be condescending and unhelpful.

Dick sorry to hear about your summer. I am sure we can all agree that with what you have gone through you speak for all of us in that life can be even more challenging with CIDP and often everything lines up to really test our ability to survive!

Jethro,
Ok, your right 😀 I am also right 😀
I like to print out the picks and see how each of us are doing during the race.
I printed the picks out before you edited yours.
That’s what your score would have been on your original picks.
Pretty good score!
Shirley

Sorry To Here.but Glad You Know.thats Always Reliefhope You Can Get Some Contol And I,ll Pray For You.

Julie, I am so sorry that you and your husbaand have gone through such a tough and scarey time. I hope that you just focus on love this weekend and not on trying to make everything like it “usually is”. Love is the important part of being with family, not what you do or what you say really, just that you can be together in love.

I am not taking up doctor defending, but I wonder if you really meant to imply that your husband’s doctor did this on purpose to him when you said you want to slap him for what he did to your husband? All medicines have side effects. I am on simvastin also and my doctor told me how safe it is for almost all. Because it is generic, it has been around quite a while and the safety profile is pretty well known. Since I work at a hospital, I see lots of doctors that have been practicing for decades retiring early because there is so much pressure from insurance companies to use only certain medications and only admit for so many days and in general second guessing everything. We had to hire someone this year just to call and try to get “preauthorization” from insurance companies for drugs that the children need to make it through chemotherapy without being miserable from side effects or not getting what is accepted standard of care. Sometimes no matter how hard it is argued, the “preferred” approach is not approved. Also if everything is not written down perfectly, insurance/medicaid may not pay anything. The number of stupid pages has probably doubled in the last two years for each patient encounter/admission to the hospital. It is enough to drive us all batty. We joke about it when we don’t feel so much like screaming. For example, you cannot register a patient for admission without answering questions like what words does he/she use for going to the bathroom. The teens really hate that one. I tell them to make up something really creative.
I know you are upset and frustrated that your “rock” got ill, but I am also sure that his doctor of 20 years would never have put him on this medicine if he would/could have predicted that he would have a reaction to it.
Just my two cents at the end of a long day.
WithHope for a cure of these diseases.

forgive me Kristin for the dumb questions. I forgot all you have written me.
Sorry, I forgot to read your initial postings and got caught up in your current post.

Emma

I also would like to say that it is with sorrow that I read that your mother passed away. I hope the God of peace brings comfort to you and your family. This is a tough disease.
WithHope for cure of these diseases and comfort when that cannot be yet.

I’m still learning to post…… I realize that wasn’t a response to mine….

I Am So Sorry That You And Debra Parted Ways For Now, Look At On The Bright Side Of Things Shes In A Much Better Place Now W/o Suffering From Gbs. After All That History YOU GUYS HAVE IS WHAT KEEPS HER ALIVE IN YOUR HEART HERE ON EARTH. I Am Sure You Guys Will See Each Other Again In Heaven.

Once Again I Am Sorry For Your Loss & May God Bless You & Your Family.

My condolescences. How awful.

Dear Doc David. I am truly sorry for your family. You are a very educated man, and I know your daughter will have a great fighting chance to get this under control quickly. I will pray for all of you! Dawn, Kevies mom 😮

Dear Liz,
I am so sorry that you are in so much pain and confused. I DO think stress causes pain, sleeplessness etc. Has your dx of cmt been confirmed yet? Good luck to you!Dawn:) 🙂

Dear Dell’s mom,
I am so sorry that you and your family and Dell are going through this! We are being admitted on Monday. Kevin also is nervous about the needles again. I know it takes longer, but when we had our spinal, they used emla cream before the ladocaine and when he recieved the ladocaine for the spinal he did not even feel the needle go in for the ladocaine. Since the iv is not as deep as a spinal, maybe emla would work for the iv. I think I am going to ask for it. I will say a prayer for all of you! I am so sorry this is happening to all of us! Good luck to you and your family.
Sincerely,
Dawn Kevies mom