So happy for you!

August 1, 2011 at 9:44 pm

Can’t wait to read your coming post as here I am going through my turn … have met several people at various phases of the sct program here in Chicago. Last night, a group met on the roof of the Seneca (thanks to a suggestion by Bill L) and had a meet and great. Wished you could have been with us!!! Met folks with MS, Lupus, RA and other things besides CIDP but all here going through Dr. Burt’s sct program – awesome!

I do have a question – I was told I would probably get out on a Friday, but will have to wait until the following Wed and an appt with Dr. Burt before being cleared to travel. Did you have to wait or were you released to travel quickly?

Thanks and welcome home!!!!!!!!!!!!!!!

So happy for you!

May 23, 2008 at 10:28 pm

Boy, things sure moved quickly, seems we just spoke & now you’re moving! I couldn’t be more pleased for you, I am sure you will be very happy there. I was there for 5 days in Feb (temps 84-86 at that time) & so did not want to come home; living in northern MN I am stuck in the house 8 months out of the year. There are always cheap flights to Orlando, so maybe I will rent a car there some time & fly there to see you.

Julie was smart in her advice, although I know that even if I were to post my full name & where I lived no one would ever venture up north this far to try to scout out our home. Besides, my husband is an avid hunter & we have an arsenal of guns. All locked up & hidden though. I hope your move goes smoothly & call or email when you get your new phone number…

So happy for you

May 1, 2007 at 6:02 am

I am so glad you have found a neuro you are happy with, and one who seems to know what he is talking about too. i think if you have confidence in your care givers you have faith you will get better.

[QUOTE]He had nate doing things with his hands, arms, toes, and fingers. He was checking nerves with his own hands, checking the reflexes in his joints, all kinds of things.

Every day while I was in ICU my doctor would measure my movement and strength and resistance in my arms, legs, hands, toes, neck, shoulders etc. He would try to make me smile, clench my teeth, look up down etc to see if my facial nerves had returned. Often he would have registrars or students etc and would be rating me 1-5. My daughter has spina bifida and has similar tests to measure her strength so I knew exactly what they were doing / what the ratings meant.