August 20, 2007 at 3:21 pm

I’m lucky if I sleep 2 hours in a row at night. Nothing helps. I get up, watch tv and try again. I take Neurontin and have sleeping pills. The sleeping pills turn me into a zombie who can’t sleep! I contracted GBS in May 2007. Maybe this will go away; I don’t know. But for now, I take the 2 hours sleep whenever I can. And I still have the night terrors and emotional meltdowns. I just try to roll with them. It’s not easy but I refuse to be a GBS victim; I aim to be a GBS survivor.


October 17, 2006 at 11:59 am

Glad to know I’m not the only one who can’t stand the taste! Why can’t they make it coated? Since my official dx 31 days ago I have been on 80mg and have had 7 IVIG – I was making some great progress on the combination but now am battling a cold and am really stressed by extrenal issues so have taken a step back. The dr. says that it will be trial and error on med combinations to see what helps me recover and keep from relapsing again.

As for side effects-I’m taking 20mg of prilosec 2x a day to keep from getting nausea and prozac to keep away the depression. I still find it really difficult to sleep at night and have even stopped napping during the day but need to take 3 Tylenol PM in order get some rest – any suggestions?