Sister Diseases

January 8, 2010 at 1:37 pm

Hi Sue,
When you look at the CIDP USA website, or the GBS/CIDP website,
you will see there are two sister diseases to CIDP, or as I put it,
to “ugly sister diseases”.
There is CIDP, that affects the peripheral nervous system.
Then there is MS that affects the CNS, (Central Nervous System).
Then, the worst, is ALS, which affects both systems.

MS and CIDP are VERY similar diseases.
With CIDP, only 1 in 100,000 people are affected.
However, with MS, 7 in 100,000 people are affected.
That is why more research is being done on MS, than CIDP.
There are more people with it, plus many famous people have it.
So, MUCH research is done on MS, and every year new meds come
out for MS. (A best friend has MS.)
But that’s all it took was to have some famous people have it,
which pushed for funding for MS, (you hear about MS Marathons all the time, etc.).
So, with all the new meds on the market for MS, you may be in a good position to put that into remission, too. And with all the research being done in trying to eliminate that disease, perhaps in the not-too-far-off future, there may be a cure for MS.
It is a shame that not that much research is being done on CIDP, but that is the problem with the rarer diseases.
So, Sue, good luck, and let us know how it goes. There is much hope with MS with the research and new meds that keep coming out.