Season

Anonymous
September 5, 2008 at 11:44 pm

Reading the account of your brothers ordeal brings back a flood of memories. I had GBS 34 years ago and was totally paralyzed like your brother. Insomnia is very common in GBS. Also weight loss. I was unable to swallow for 6 weeks and went as low as 95 pounds. I am 5′ 8″ tall and was pregnant at the time.

The most important thing you and your Mom can do is to keep showing up.
GBS is a long and frustrating disorder. It is hard when you are that sick to believe that one day you will be able to walk again or lead a normal life. The days seem endless and the frustration drives you nuts. I remember the day I took my first sip of water after more than six weeks. I was so happy I cried. One thing GBS will do for your brother, it will put things in perspective. I don’t sweat the small stuff. I. like so many others on here, know how quickly your life can be turned upside down by this insidious syndrome.

Take Care and tell your bother to hang in there. It will get better, but it will take time.