SCT vs. High dose cytoxan…

Anonymous
September 29, 2011 at 9:39 am

Alice , who was one of the first on this forum to have SCT, & I have talked about this before. She had the SCT a few years ago, I had the high dose cytoxan treatments back in 2003. In both cases our CIDP was arrested, although I did have to go through 9 months of monthly infusions; her treatment was much quicker. But my infusions cost $800 a month at our local oncology center, & her treatment was very expensive. But in my case I was refractory to IVIG, PE & solumedrol infusions & in very bad condition physically. I believe that there probably are more risks getting chemo than IVIG. Also, one would probably need to be in pretty bad shape for their doctor in order to get this protocol.But for me it was literally a lifesaver, & it has been 8 years since I have had any type of treatment. I have suffered no adverse side effects so far.