Screwed…

Anonymous
November 8, 2010 at 11:41 pm

Dieno,
Of course you have a right to feel screwed, we all do, & you are still in a downward spiral & on so many treatments. Trust, me, my mind was in a very dark place for the first 2 1/2 years of this illness. Both GBS & CIDP are devestating illnesses to have, no one will argue with you on that one. Are you sure that there isn’t something else going on with you besides the CIDP, as you have so many symptoms, even with all of those treatments. We have had many others come on here through the years, stating that none of the treatments for CIDP are working, only to have them come back on & let us know that they were misdiagnosed. Some have had CMT, MS, ALS, or other illnesses & not CIDP. The bladder thing is new to me even at my very worst, that was never an issue; but then we can all be so different.