October 19, 2009 at 6:32 pm

I never Thought Of That But I Experience The Same Thing ! Sometimes I Will Be Talking To Someone Relaying A Story, And I Jumble My Words And Sometimes Repeat Words Even Though I Know What Im Trying To Say. Im Sure Normal People Do This Sometimes, But Honestly I Don’t Recall It For Me Prior To The GBS. Im Wondering, Have You Spoken To Your Neuro About This? And If So, Did They Say There Could Be a Relation? I Like My Neuro But She acted Like Once I was Better I Was Better And Never Spoke To Me About ANy Possible Residual Effects.


June 21, 2009 at 1:35 am

I had this exact same problem! I have had cidp for 9 years. My grandmother first noticed the left side of my face was swollen and then the next day I felt it. My doctor first thought I had mumps as well but did not present other symptoms. They ended up putting me on antibiotics in case it was a salivary infections – it took some time but eventually the swelling went down. Quite painful and I never fully understood what it was. That is the only time I have had it.