January 20, 2009 at 3:19 pm

I had no idea how hard it was to write, and said only you knew your situation and what you could do. Someone once said, “We made our mistake when we first went to work. If we never had went to work we could be getting a SSI checks and food stamps. We would have the best medical, prescriptions, dental, and eye glass insurance of any working person”.
Well, that said…I would still prefer to be a dummy and go to work each day !!! Just think about it…who is really the smart one in this case ? lol ๐Ÿ™‚
Jeff, I did not know that you were a writer. God’s best for you too my friend. I never did have the patience to sit down and read a book. My mind would always think of so many other things I should be doing. lol ๐Ÿ™‚ I wish I did like to read books now that I am sick.
Rocker, you take care of your health the best you can and just try to overlook people who may judge you, and don’t know a thing about your health problems. I will be talking at you later. ๐Ÿ™‚

God bless,


January 10, 2009 at 2:07 am

Thank you for the post. I can relate to your fatigue and feel like others see me as lazy. Yeah, even from my own family. It has been longer for me and have not been able to work a day since GBS. Oh, I get disability SS, but that is just a servival kit compared to what I should be making. That gets me depressed as much as anything. I feel like I have cheated my family from having so many things that I should be able to afford to buy for them. I think you can get disability SS if you would just apply; with an SS attorney. You could definitely write for magazines or newspapers or write your own books …if you have enough energy ? Rocker, I will tell you what my alcoholic brother was told when when he could not stay away from a drink long enoght to work. When he went to the attorney about this, he was in early fiftys then, the attorney told him right off the bat, “You talk too smart, and that will make it harder to get your SS”. Rocker, sometimes it helps to get your SS if you are willing to play dumb. I know, it is dishonest and you may not want to do that. I thought of a answering service for you, if you can stay awake that long, because you talk smark and it would be great, for say; something like a Doctors office and other similar places. Just a thought Rocker as like I say only you know your limits. God bless you and a special prayer for you my friend.



May 4, 2007 at 2:19 pm

At last, someone just speaking it to the point!!!!. Like I said before “Full Recovery” B.S., I will repeat myself again and say that I really believe we should not say we HAD GBS, but HAVE GBS, because the residuals will alwyas haunt us……. or should I say most of us. These docs are full of it….. I only wish they could walk in our shoes. Boy I bet they would change their tune about this thing called “FULL RECOVERY” xoxoxooxoxo Roxie