rituximab repeat treatment

March 20, 2010 at 8:05 am

I have the axonal version of CIDP, and have had rituximab treatment twice, at yearly intervals. It seems to have slowed my decline,(it is not very measurable), and as it is the only thing on offer to me, I want to have another go. It is too late wait and see if not having it, leads to accelerated decline, because there is no going back.
My haematologist is not keen to proceed, even though I have no bad reaction to this chemo.

Has anyone experience of multiple treatments, with good or bad reactions, that I can use to plead my case ?