rhonda and ryan

Anonymous
April 7, 2010 at 8:01 pm

[FONT=”Microsoft Sans Serif”]i’m very happy to hear this!!![/FONT]

rhonda and ryan

Anonymous
March 5, 2010 at 9:39 am

[FONT=”Microsoft Sans Serif”]hey rhonda, i had the light headed feeling too. especially after getting up from a seated or horizontal position. in fact, i fainted a few times. the chemo and the reacting cidp are bound to make him feel lots of nasty things… i doubt he’s having mini seizures, although i can appreciate a mother’s fear and angst. glad you are running it buy his doctor but– remember this– the oncologist doesn’t know cidp well and the neurologist doesn’t know the effects of cytoxan well– so they may not be able to speak directly to these symptoms. having had cidp and cytoxan, i can tell you that it sounds pretty normal to me. hope that helps some…
alice[/FONT]

rhonda and ryan

Anonymous
February 5, 2010 at 10:19 pm

the fact that ryan has already done cytoxan and will be doing more does not make him ineligible for the program– as a matter of fact, jim d., who is currently going through the treatment, had cytoxan treatments prior… we are here with him in chicago for support– his blog is a part of my website if you’d like to follow how he’s doing…

regarding the length of the protocol– start to finish– it’s approximately 2 months– but there are a couple of sizable breaks where you can go home and take a break…

i’ll send you my number in a private message so you can call if you want to discuss it further…