Residuals linger after 21 years

December 20, 2007 at 4:44 pm

Hello to all
I had GBS in Oct 1986 and was in the hospital for 6 months. I had a tracheotomy and was on a ventilator for 6 weeks. Very grateful to be alive. I need a lot of patience with myself and not compare myself with other people who have never experienced this disease. My residual symptoms make me feel that things are not quite right, like losing my balance and needing a cane. I get periodic bouts of anxiety and depression, my soles of my feet are numb. My throat feels like there is something there but the Dr. says I am OK. He did say that GBS patients do get that feeling in their throat because of the nerve damage. I felt better to hear that. I also get muscle aches all over at times. Have been hospitalized numerous times for chest pain. My hands work well but I have to work at my writing more than usual. I have had periods of time when all I want to do is sleep. I made a mistake by taking a night shift nursing job which messed up my sleeping pattern. I ended up sleeping over 24 hours at a time. I am now retired and have a good eating and sleeping schedule. I know it would help to get mild exercise every day. Have been lazy about that. If I would work again I would get a day job and make sure I took care of eating meals and resting enough. Most of all I keep a positive attitude and realize God kept me alive for a reason. Every day I ask God what is my purpose TODAY and thank Him for another day to serve Him.
Blessings to all.