Reply To: Variants
Bny – Something just dawned on me. If you have similar symptoms to Emily maybe you need a similar treatment plan. Emily’s treatment plan, in the beginning, was intense – to say the least. She required IVIG 2-3 times a week. I know Dawn mentioned, in another thread, about you doing loading doses for awhile…based on your symptoms being so similar to Emily’s, I would have to agree with her.
In the other thread Dawn said your loading dose should be 114 grams. If it were me, I would request to do a 5 day loading dose – getting the whole 114 grams in is important. Then I would request to do 30 grams (it’s just easier to round up from 28.5) weekly. Emily has always gotten 20 grams at every infusion &, with doing IV’s now, it takes a little over 3 hours each time. If you can set up home care to come after you get home from work then it won’t really be that big of an intrusion. Just order pizza on treatment nights & watch movies.