Reply To: Support Group in NYC ??

February 21, 2012 at 5:46 am


The Foundation newsletter, which comes out about once a quarter, has an insert of all of the liaison’s contact information. You then call or e-mail the liaison to initiate the contact. If you don’t get the Foundation newsletter, you can call the Foundation. They will then give you the name and contact information of your nearest liaison. Some liaisons have secondary contacts that they call upon. If you want to talk with one of them, the liaison will give you his/her contact information.

Another option is to ask your neurologist or infusion nurse if any of his/her patients are willing to talk with others. It is a little difficult for this coordination to happen because of HIPAA restrictions, but it can happen.