Reply To: Stem Cell Transplant

May 23, 2012 at 10:12 pm

Linda–yes that would be nice if you hear from yuehen, others from here have asked about him as well. I am doing okay–thanks for asking :). holding okay on the ivig but not as good as i hoped. Getting ready to start rituxin soon. My cidp is a little complicated due to the paraneoplastic antibody. both Dr Dyck (mayo) and my dr have no doubt that it is immune system related-but because this antibody could be a prelude to cancer they are making me do head to toe cancer screenings before the rituxon. i have just a upper GI left to complete which is next tues–so it looks like i will receive my first rituxin infusion on Thursday the 31st!!!
if you dont see any posts from me after that–let it be known that the stuff killed me–lol. Did you have rituxin before you got the cyclosporin during your sct? i was following a few other sct blogs and they had posted about getting rituxin. This is my final thing I am trying before applying for the sct. My youngest son just turned 16 and got his drivers license. that makes it easier for me to be gone for the time needed for the sct.

Fred—I am in the process of getting started on rituxin. If you end up going that route we can compare experiences with it. It would be nice to have someone to discuss it with. i will be using the 1000mg schedule which i am very happy about–its the dose used for rhem. arthritus . only 2 infusions of the 1000 evry 6 months for 3 rounds. my drs theory was to hit it hard with the 1000 so we would really know if it was doing anything or not—works for me. i have the slowly progressive type cidp and sometimes on the ivig i have a hard time determining if its doing anything or not. Lori