Reply To: Stem Cell Transplant

Anonymous
May 22, 2012 at 2:19 am

Fred, I had active demyelination but didn’t have much muscle impact and the neurologist on the team wasn’t certain I had cidp. So Dr Burt wanted me to go off the ivig and up the immuran to see if I maintained, got better or got worse. I got much worse and then went back for re-evaluation. The neuro I saw the first time still wasn’t convinced I met the FDA criteria, so was discouraging. But then Dr Burt caled me and told me he believed I did have it and told me he accepted me off study.