Reply To: Starting my 4 day load up of ivig

My experience with IV-IG – was that it provided a very slight (almost imperceptible) increase in strength and no impact (or even acceleration) on the continued decline of my sensory nerves/ Prednisone helped reverse symptoms for a period of a maybe a week – then it was back to rapid progression

The only thing that worked – and it worked like a miracle was HSCT/ It stopped CIDP DEAD COLD in its tracks and my body immediately began to heal/ I was wheelchair bound – an my entire body was horribly impacted/ Within a month I was able to walk again/ Today it is almost like CIDP never happened/ All other treatments were like blowing on a boulder that was rolling down on me/ HSCT was like 10 tons of dynamite blowing up the boulder/ It was THAT dramatic/

I think my condition was tailor made for HSCT – that it is that I had a very rapid onset – Went from power walking a marathon to a wheel chair in 5 months/ I do not think I would have survived another 2-3 months/ The good part was that because my onset was so quick – my underlying nerve axons were still in relatively good shape/ All we had to do was stop the attack and allow my body to heal/ That’s what HSCT does – its literally like having a laptop plugged up with viruses and then re-loading windows – A total re-boot of the immune system/ Even got rid of all my allergies (no more hay fever) and I swear where my hair grew back there was no grey in it like before!

I think this should be front-line treatment/ Honestly I do not know why people waste time on the other ineffective treatments – when life saving life changing technology exists/ It is safe – easy to tolerate – and most of all IT WORKS!

Iam off for a bicycle ride! Happy Fourth of July Everybody!