Reply To: Sharing my story.

Thank you azgold; I’m interpreting your name to be someone that lives in Ariznoa. We are almost “neighbors” as I am in West Texas.

I feel very lucky to have recovered so quickly; as I was typing my experience I began to get a strange sense, almost embarrassment combined with unworthiness. There are so many folks here that have not been as fortunate as I have been in terms of recovery. Honestly, I almost did not write the original post for that reason, but ended posting it hoping that it could be a positive influence or an inspiration to someone. I appreciate you taking the time to comment.

Thank you for the words of encouragement regarding a relapse. If it happens I now know exactly what it feels like and what to expect; there was very little hesitation (if any) to seek urgent care the first time, and there would certainly be none should it happen again. I believe that is what was in my favor during my onset days. I still have one more EMG/NCV study scheduled but I am beginning to think they aren’t necessary.

Fortunately the unsettling/unbalanced/uncoordiated feelings are becoming fewer and further in between. I started playing tennis again last month and I was terrified of stumbling over my toes or kicking my foot with my other foot and falling. Now it seldom enters my mind even when running and hitting. I can say that if I am in a seated position for too long my feet will feel numb…and that really gets my mind going.

I will keep you in my thoughts and prayers for your continued recovery. I had a nurse at the in-patient rehab clinic tell me, “I want you to look at that clock on the wall. Each second that passes, you’re getting better”.

If you had questions I would be happy to answer.

Thank you again for replying.

Onward and Upward
Joseph