Reply To: Second Nerve Conduction Study, What to do?

jgl i too just recently started immunosuppressants (rituxin) had no immediate side effects. It is too soon to tell if i will have any long term. I have tried prednisone, it did not work for me. I thought ivig was working because i felt better, but i continued to get weaker and all of my ncv/emg showed the disease slowly progressing.
I have mainly axonal, some dyminlation type of cidp and have had a sural nerve biopsy to confirm the diagnosis. The nerve biopsy was done under local anethesia, i was able to walk on it immediately after. There was pain in that area for a few weeks when i flexed my foot, not unbearable, completely gone after a week or so. There is more numbness in that area of my foot in a small area beside my outer ankle bone.
A second opinion is always a good idea, especially if you do not have a definite diagnosis. my own Dr recommended it for me and set me up with Dr Dyck at the Mayo. Hopefully the prednisone will work for you but if it doesnt just know there are other treatments available. It’s just a matter of finding what works for you.