Reply To: Second Nerve Conduction Study, What to do?

July 23, 2012 at 9:37 pm

A nerve biopsy is used to help nail down the diagnosis. In typical cases, it isn’t often necessary. Since your spinal fluid test supports the diagnosis, I don’t know why you would need one. I’m not saying you don’t, understand, just suggesting that you ask your doctor about it.

I understand your feelings — this is no walk in the park. I, too, kept descending after initial IvIg treatments. Ultimately, I had plasma exchange which turned things around for me (along with drug treatments). Try to focus on the positive. It is possible to recover from CIDP and should expect to get through the worst and start recovery. I was paralyzed below the neck by CIDP. Now, less than two years later, I walk without any assistive devices. This will turn around for you, too.