Reply To: Second Nerve Conduction Study, What to do?

jgl No, i do not have the anti-mag type cidp. My symptoms are very slowly progressive, no pain, distal, no autonomic nerves affected, sensory and motor involvement, predominantly axonal. I do have an identifed anti-body–possibly paraneoplastic, but so far after extensive testing there has been no cancer. The abnormal anti-body is the reason my dr chose to use rituxin as immunosuppressant of choice after unsuccessful trials of prednisone,PE and ivig.
The anti-mag is detected from a blood test, i asked my dr if i had the anti mag type and she said no. I read through all of my blood tests (between hers and my labs from mayo i have had an extensive amount of labwork) i didnt see anything that specifically said “anti-mag” but she is extremly thorough, so since she said no, one of the tests i have had must have shown her that.
I dont know if the anti-mag responds to sct or not.,
there are some types of cidp that get worse with steroids.
——i find the problem with the symptoms being so slowly progressive that it is often difficult to tell sometimes if things are better or worse. Like you, i thought i was improvimg on the ivig at one time, only to find out the emg/ncv showed progression.
how long have you been diagnosed with cidp? i was dxed in june of 2009–a litttle over 3 years ago.