Reply To: Second Nerve Conduction Study, What to do?

July 24, 2012 at 4:02 am

JGL,

Is there any reason your neurologist gave you for not providing more IVIg? Are there financial considerations for you (large co-pay, insufficient sick time, etc)? Do you have bad side effects (days of killer headaches, days of flu-like symptoms, renal failure)? Following a standard protocol, you would get 2 g of IVIg per kg of body weight, spread over 5 days. You would then get 1 g/kg every 3 to 4 weeks until you were stable. Then either the dose would be reduced or the time lengthened. Have you had a protocol like that? If not, encourage your doctor to try it before going to steroids. Have her read this document: http://www.pnsociety.com/Guidelines_CIDP.pdf, especially pages 225 and 226 (no, the document is not that long; it is an article in a journal). Even though I took steroids, and have no regrets about doing so, I would try to give the IVIg a better shot that it looks like you have had. If IVIg does not do the trick, I would consider plasmapheresis, then steroids.

Godspeed in your treatment,
MarkEns