Reply To: SCT… What is the success rate.

Dianna –  I am not sure about the Anti-Mag w/ MGUS.   I think you might want to contact Jon A (write me privately and I’ll give you his full name) from Australia.  He had an Anti-Mag variant of CIDP went through a SCT and has had his difficulties.

All I can say is that it has been a miracle for me.   I had an extremely aggressive form – they called it “malignant CIDP” – went from doing a marathon to completely wheel chair / bed bound in 5 months.  I had the SCT in March of 2010 – and my recovery has been amazing and lasting.  I have 100% of my strength back and 99% of my function (can’t quite spread my toes).   Functionally – I am all back.   I have been left with pain in my feet though which prevents me from walking too far or standing on my feet for too long.   Iam living a fairly normal life – except that I have to manage my foot time.   Considering where I was at and where I was heading (the ventilator) – SCT has been an absolute miracle.