Reply To: Screaming pain
Larry, was the IVIG helping with the pain ? If so, maybe you could find another dr who could get you back on it.
As for the mayo in MN, i went out there too. In my opinion–they are good at diagnosing but not so good at treating.
Have you considered applying for the sct–there was a person on there who was in significant pain and it helped with her pain.
Don’t just accept the pain, nobody should have to suffer with that. If you can’t get in with a Dr soon, go to a hospital with a reputable neurologist on staff and plank yourself in the ER until they get a DR to help with the pain. Lori