Reply To: Scared and Confused?!

It is very important at this stage not to overexert yourself, and you must monitor your strength daily to determine if you are experiencing a persistant loss of strength. This would be an indication that the disease is still active. This must not be confused with temporary weakness due to exhaustion. If you continue to lose strength due to demyelanation, your neurologist needs to check it.

I am not clear on what, exactly, your neurologist has “only seen … One other time.” Is your neurologist experienced in treating GBS and CIDP?