Reply To: rituxin treatments

Hi Phoenix,  I felt like the rituxin was working in the beginning. I was doing only that, no ivig once i had rituxin.  I had two 1000 mg doses, which the dr said should last 6-9 months.  After 5 months I began feeling like I was getting worse. Still fighting with my insurance company regarding the rituxin , so another dose was not an option for me.  I had to go back on ivig in Jauuary to keep from getting worse. I have applied for stem cell tranplant and will be going to chicago in May to see if i qualify.

I did not get a significant response from the rituxin and have not from ivig, plasma xc or prednisone.  my dx is preety confirmed from numerous tests at mayo—dont know why nothing seems to be working for me.