Reply To: rituxin for people WITHOUT the anti-mag type neuropathy

Thanks to Lori, Dawn and all the moms on this forum. Women are strong, courageous and did I say strong? Dawn: I am so sorry that your son has to deal with this horror. Each day I roll out of bed and tell myself I can do this – I can do this because I would ask for this everyday rather than have one of my boys suffer like I do. Your Kevin sounds like he has been loved and supported; what great lessons you are teaching him, lessons that will last his lifetime and those of his childrens’.
Lori: thanks for the support/push to challenge my insurance co; I will definately take a big breath and go for it. Right now I am trying to schedule plasmapharesis. Hoping that process will restart my immune system.
Dawn: cheers to your bravery and courage as you cheer your son on through the many challenges he faces. In his short life he has experienced so much – and handled school, socializing, and even outtings with his brother so well.
*Check out the sub q trial being held by Hizeria (drug manufacturer) and the Weill Cornell Medical center in NYC. From everything I have read, the headaches are minimized through this new delivery system. Not sure if they wil allow a young adult to do it; certainly worth a phone call.
Thanks again, ladies