Reply To: rituxan

March 24, 2012 at 8:50 pm

I have Dr. Russell Chin – I just saw him a couple of weeks ago. I really like him/the group; they took one look at me and knew what was up. What a relief to find someone who knew what they were doing; who had seen cases like mine before AND who was so respectful and kind.
Dr. Chin and a new fellow (who came in to observe me) told me about the study. Orignally, I had done a lot of research on it and all the reports were quite positive. I had set Dr. Chin up with a contact at Hizera who handles insurance and Dr inquires. A group met with her (at a conference or?? not sure) and they were so impressed with the ease of use, and lack of side effects. They told me about the study.If you have typical CIDP you may have a chance.
1. I asked them if they had other SPS patients and they said yes – is it you?
2. If you are not doing ivig what ARE you doing/taking? I am really, really struggling and can’t handle the headaches from the infusions = but falling apart from CIDP and SPS.
thanks for any/all info