Reply To: Relapse?

July 21, 2012 at 9:11 pm

I’m assuming you are with Kaiser. I haven’t had them, but understand there may be difficulties getting to see a specialist out of your immediate area. Dr. Wong definitely has experience with GBS and CIDP, but also important is that he as excellent rapport with patients (at least for me — I didn’t give him any difficulties). I, too, was initially diagnosed as GBS but this was changed to CIDP. Dr. Wong kept an open mind about it until he arrived at the best diagnosis and treatment.

You don’t want to wait until you need the ER. It seems to me that with your history you ought to be able to get a neuro exam. If Kaiser won’t do that, it doesn’t speak well for them.

IvIg is a scarce and expensive resource. You are not likely to receive it until you have a more specific diagnosis that calls for it.