Reply To: Recovery Expectations

September 2, 2012 at 3:28 pm

Thank you both for your replies. I actually went to my first physical therapy sessions the day after I got out of the hospital, on Wednesday. I had physical, occupational, and speech. Going forward I am supposed to have physical and occupational twice a week. I have exercises I am supposed to do at home and I have done them al0ng with as much other activity as possible. I go to the neurologist this coming Wednesday for my first follow-up. I also had my mother-in-law who is a licensed massage therapist give me a Thai massage. It is just so hard to know if I’m doing too much or too little….should be resting more or not. I definitely feel my strength slowly coming back but I guess I’m just frustrated that the tingling/numbness has remained unchanged or gotten a little worse. Most of my tingling/numbness is in my hands and feet with some numbness in my mouth which makes eating a chore. My feet feel like they weight 1,000 lbs. Anyway, I know that I need to be patience…and apparently there is no “normal” with GBS… but just curious if anybody else  had a similar experience. Thanks again for your responses. God bless.