Reply To: questions from recently diagnosed CIDP
My neurologist didn’t think a nerve biopsy was necessary, so I’m hoping I don’t have to do it. My ankles are actually probably my strongest area, so not sure if that would affect the results. I’ve heard a couple of people mention having atypical cidp and I’m curious about what some of the variations are. The only thing I remember being said early on about my case is that it was a bit unusual that I wasn’t equally weak in all areas. Even though I thought I was having a lot of trouble with my legs as things progressed at the end of the year, I was told my arms were actually weaker. I had a month where things were not back to normal, but much better. As I get worse again now, I still think my symptoms are not as bad as some people have. I am having difficulty with weakness, numbness, etc., but I’m still functioning, at least right now. While I’m waiting to hear from my doctor about starting prednisone, I just wonder if anyone has had any degree of relief from something like a prescription strength anti-inflammatory drug like ibuprophen. I’d like to take the least harmful medicine that might help. I guess I’m just searching… Thanks so much for sharing your experiences.