Reply To: questions from recently diagnosed CIDP

March 21, 2013 at 8:23 pm

I appreciate hearing the positive experiences and results others have had; it does provide hope for better days ahead.  I’m hopeful with my appointment in a few days and possibly some movement toward working on the insurance problem that these things will get me started in a better direction.  I feel at my best in the afternoons, which I’ve suspected could be due to the amount of prednisone in my system, but I don’t know.  Nevertheless, I can curl the 1 lb. weight this afternoon (for 3-4 reps), but could not during the morning hours – same thing yesterday.  I’m also using a cane to help with balance.  I can still move, but the effort and energy doesn’t match up with these simple activities.  I guess I’m still trying to evaluate everything, looking for patterns, etc. as I try to figure this thing out.  Thanks again for taking time to respond and offer information and encouragement.