Reply To: Proximal and distal weakness anyone?
THanks so much yall!!! Lori- after the nerve/skin punch biopsy came back abnormal up to my thigh, plus abnormal autonomic testing, and response to IVIG they are going to treat me as CIDP/inflammatory polyneuropathy, also in my most symptomatic leg my reflexes are finally diminishing … I really hate not having a firm diagnosis of this though.. my mind always goes to worse places as far as diagnostic possibilities.. if all my reflexes were diminished and my ncv/emg showed without question cidp (first one did show some demylenation) then I wouldn’t question everything as much 🙂 yes.. I see people running, and carrying their kids etc without difficulty and have a bit of jealousy i must say.. to do all those everyday things without having to think twice, would be so nice.. but hey things can always be worse, so i’m not complaining!
exosurf- glad to hear i’m not alone with the hip thing! My hands also used to be worse! I could barely hold the formula scooper or pen or mascara when this first hit me.. it was just like one day I could do everything and then the next day could barely do anything – squeezing the shampoo bottle was also difficult for me as well.
Do either of yall fall over when closing your eyes?? At the beginning when the neuros would test that with me I could still stand pretty stable.. but now i close my eyes and topple right over.. I sware I almost fall a lot right now, since this last relapse hitting my hips.. I just hope I don’t face plant while holding my kids!!
Guess the good news about the relapse is that I cn’at feel my broken toe anymore! 🙂