Reply To: Post Miller Fisher

August 13, 2013 at 9:08 pm

I was diagnosed with MFS in 2009 after having first been taken down by GBS/CIDP in 2008. The MFS variant paralyzed the right side of my face. I could not close my right eye, I could not open the right side of my mouth, when I tried to smile only the left side of my mouth moved, I had difficulty eating, speaking, and my vision became so blurred the doctors declared me legally blind.

Today, 5 years later, I can close my right eye (mostly), I now smile from both sides of my mouth (a little less widely on the right side), I have no problems eating, surgery restored my vision, and my speech is much clearer (still a little slurred though). The right side of my face still remains slightly numb and itchy.

I am thankful for the recovery I have had from MFS, even if it is not yet close to 100% … any improvement is welcome! I wish I had the same level of improvement from CIDP, but it appears I am going to be a paraplegic the rest of my life. Thank god for power wheelchairs, without one I would not be able to get out and around town, and that freedom to travel helps me remain hopeful.