Reply To: Please tell me your story…GBS vs. CIDP vs. other

Hi Heathersmansfield, my GBS was misdiagnosed because it presented so asymetrical…GBS is commonly symetrical. My symptoms started March 2012 so it’s still early days for me too. I find the pain absolutely excruciating but I am learning to adjust medication to try and eliminate as much as I can. I had an upper respiratory infection thay perceded the GBS…truthfully, I have my moments of worry that it could be cidp but I do as my neuro told me and do a little bit and then rest. It’s very difficult but I rejoice every day that it wasn’t as severe on both sides of my body…and that there was no respiratory paralysis. I am off work and expect to be for several months yet so I will check for any response from you tomorrow. I am in UK but wanted to be part of the international forum too…hope to hear from you
Dixie x